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Welcome to the World!
Starting with a complicated pregnancy, baby Sunny was born at 39 5/7 weeks gestation. The pregnancy was complicated by polyhydramnios and only two vessels in the placenta cord. -
Period: to
Lifespan
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Bad News :(
Baby Sunny was diagnosed with chromosome 7 microduplication, tracheoesophageal fistulas, type 2 laryngeal cleft, atrial septal defect (ASD), ventricular septal defect (VSD), and patent ductus arteriosus (PDA). -
Tracheoesophageal Fistula Repair Take One
Baby Sunny needed a surgery to close the fistula between her trachea and esophagus. With this tunnel connecting the two organs, Sunny's ability to eat and breathe are extremely impaired and dangerous. -
ASD and VSD Repair Take One
Because there is a defect in the septal wall between both the atria and ventricles, Baby Sunny must have surgery to close the holes. A patch is used to prevent back flow between atria and ventricles. -
Gastrostomy/Jejunostomy Tube Placed
Nutrition is poor due to the recovery from the tracheoesophageal fistula. Baby Sunny has a G/J tube placed to supply total enteral nutrition as well as administer medications. -
Tracheoesophageal Fistula Repair Take Two
Baby Sunny developed a second tracheoesophageal fistula that must be repaired. The connection is again closed between the trachea and esophagus. -
Laryngotracheal Reconstruction
Baby Sunny needed this surgery to repair the laryngeal cleft palate that she was born with. This surgery recontructed the larynx to remove the cleft. -
Tracheoesophageal Fistula Repair Take Three
This is the final tracheoesophageal fistula repair for Baby Sunny. The fistula was repaired using a slide tracheoplasty, which essentially prevents more fistulas to form. -
PDA Ligation
During the final repair of the tracheoesophageal fistula, Baby Sunny had a patent ductus arteriosus (PDA) ligation. This surgery closes off the connection between the aorta and pulmonary artery using sutures at each end to tie it off. -
VSD and ASD Repair Take Two
Because the VSD and ASD opened, they again closed it with patches. -
Sister to the Rescue
Because the father is unavailable to help with cares, it is necessary to designate a second person as a care provider. The mother's younger sister has agreed to learn the different cares associated with a trach/home ventilator and to become the second care provider. -
Tracheostomy Placed
Baby Sunny had a tracheostomy placed to aid in breathing and to set up a home ventilator. She will go home soon with the home vent. -
Kink in the Plan
The landlord will not comply with the electrical updates needed to support the home ventilator. Mother may have to look for a new apartment. -
Discharge Hopeful
Team will hold a discharge meeting with mom to go over independent cares and determine any extra teaching needs before discharge. -
New Apartment!
Mother will sign lease today and move in on Oct. 1. This new apartment will support the elecrtical needs of the home ventilator.
