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Older Americans Act created
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Area Agencies on Aging providing services
Area Agencies on Aging operated a delivery system to provide community-based services to older adults and their caregivers (N4A). -
Generation United created
The Generation United is created by groups including the National Council on Aging (ACL, n.d.). -
Eldercare Locator began by telephone
The Eldercare Locator began by telephone (Eldercare, 2010). -
Relatives as Parents Program (RAPP) created
The Brookdale Foundation Group established Relatives as Parents Program (RAPP) to expand services to grandparents and other relatives who assume the role of surrogate parent (ACL, n.d.). -
The National Alliance for Caregiving established
The National Alliance for Caregiving is established to focus on family caregiving issues (ACL, n.d.). -
National Family Caregiver Support Program created
The National Family Caregiver Support Program (NFCSP) was enacted which supports caregiver programs in every state (Feinberg, Wolkwitz, & Goldstein, 2006). States are required to pass funds to non-profit and state agencies providing caregiver support services via 56 state agencies and 629 AAAs. NFCSP grants support counseling, respite services, nutritional services, caregiver training, disease prevention, health promotion, and supplemental services (George Washington Univ., 2012). -
The National Center on Caregiving created
The National Center on Caregiving (NCC) created to advance policies supporting caregivers (ACL, n.d.). -
Eldercare Locator website began
The Eldercare Locator website began (Eldercare, 2010). -
2002 U.S. Dept. of Health & Services
2002 U.S. Department of Health and Services finds caregivers to be exhausted and burnt out leading to the need for loved one to be institutionalized (Feinberg, Wolkwitz, & Goldstein, 2006). -
Survey by National Ctr on Caregiving and Family Care
There was a survey of programs in all fifty states. The National Center on Caregiving and Family Care highlighted three focus areas:
Assessment of caregiver needs,
Consumer direction in family caregiver support services
Collaboration on caregiving between aging network and health care providers
(Feinberg, Wolkwitz, & Goldstein, 2006) -
Need to support caregiver so that they can work
2004 The need to support caregivers so that they can remain working is identified (Feinberg, Wolkwitz, & Goldstein, 2006). -
Survey - 75% caregiving > 3 years
A survey found that over 75% of caregivers had been providing care for at least three years and that 25% of the caregivers were over the age of 75
(Feinberg, Wolkwitz, & Goldstein, 2006). -
AARP contracted with National Ctr on Caregiving
AARP contracted with National Center on Caregiving to obtain more information on trends (Feinberg, Wolkwitz, & Goldstein, 2006). -
Aging & Disability Resource Centers (ADRCs)
Amendments required Administration on Aging to implement Aging & Disability Resource Centers (ADRCs). There were 533,000 caregivers that received assistance, which is estimated to be only 7.6% of all caregivers (Feinberg, Wolkwitz, & Goldstein, 2006). -
Over $153 million funded
Funding for Family Caregiver Support Services $153,439,000 (ACL, n.d.). -
Estimation that 600,000 NFCSP recipients annualy
It is estimated that more than 600,000 caregivers receive family caregiver assistance through the National Family Caregiver Support Program (NFCSP) developed by the Administration on Aging. Fifty-five percent of caregivers say that the recipient needs someone close by in order to be safe and 68% of caregivers are over the age of 60 and caring for someone older than age 85 (Foster & Kleinman, 2011). -
Over $154 million funded
Funding for Family Caregiver Support Services $154,220,000 (ACL, n.d.). -
Estimation of 450 billion in care by family caregivers
It is estimated that 450 billion in care is provided by family caregivers. Sixty-one percent of frail older adults at home receive care from a family caregiver and 72% of frail older adults receive care from family caregivers and paid caregivers (Foster & Kleinman, 2011). -
Funding based on population age
NFCSP is provided by the federal government based on the state's percentage of those older than age 70. Then states each have their own formulas for providing funds to the Area Agencies on Aging (George Washington Univ., 2012). -
Caregivers overwhelmed
Many family caregivers report that their own health problem or disability affects their ability to provide care. Seventy percent say that they provide at least forty hours of care and 18% of adult children and 15% of other caregivers report providing 24-hour care. Over 75% of caregivers say they help with instrumental activities of daily living (IADLs) and two-thirds report that they help with one of the four ADLs of dressing, bathing, eating, or using the toilet (Foster & Kleinman, 2011).
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Physical, emotional, and financial strain reported
Fifth National Survey of Area Agencies on Aging
The survey finds that caregiving leads to physical strain for as many as 44% of spouses, emotional strain for 50% of spouses, and financial strain for 33% of spouses, and also affects adult children caregivers and other caregivers in much the same way but at a slightly lesser percentage (Foster & Kleinman, 2011). -
NFCSP ratings - Excellent and Very Good
Eighty percent of the caregivers that received benefits from the NFCSP rated them as excellent or very good. The survey found that 92% those receiving all types of services rated the NFCSP services as excellent or very good, where as only 61% of those receiving one type of service rated them that way. Seventy-six percent of caregivers reported less stress due to the NFCSP services and 77% felt that they received help with caregiving challenges (Foster & Kleinman, 2011). -
Title VI Grants for Indian tribes and Native Hawaiian organizations
Administration on Aging awards Title VI grants to 218 organizations, including Indian tribes and Native Hawaiian organizations (George Washington Univ., 2012). -
AAAs serving all age caregivers
58.8% of AAAs serve caregivers of all ages (N4A). -
Over 700K caregiver recipients of NFCSP
Over 700,000 caregivers receive support from NFCSP (ACL, n.d.). -
Over $154 million funded
Funding for Family Caregiver Support Services $154,197,000 (ACL, n.d.). -
10th Anniversary of the NFCSP
10th Anniversary of the NFCSP -
Over $153 million funded
Funding for Family Caregiver Support Services $153,911,000 (ACL, n.d.). -
NAC presented priorities
National Alliance for Caregiving presented priorities to the Senate Health, Education, Labor, and Pensions (HELP) subcommittee recommending that caregiver assessment be added as an allowable service and funding increased to 250 million due to need. They also requested that the definition of caregiver include older caregivers with adult disabled children and all variety of families regardless of race, ethnicity and include LGBT communities (NAC, 2012). -
Strengthening Services for Americans Seniors Act (S1819)
Strengthening Services for Americans Seniors Act (S1819) added caregiver assessments, support for Ombudsman for long-term care resident and family councils, and created an Advisory Council to streamline legal services (NAC, 2012). -
NFCSP received 153.6 million
Grants were 71%, almost 1.4 billion, of the Older Americans Act funds. Family caregiver support programs (NFCSP) received 153.6 million, or 8% of all funding for over 600,000 caregivers each year but reach a small percentage of all caregivers (George Washington Univ., 2012). -
Older Americans Act Amendments of 2012 (S3562)
OAA Amendments of 2012 (S3562) added older relative caregiver to disabled adult to caregiver definition, created a voluntary caregiver assessment program, supported the development of resident and family councils in long-term care settings, and provided for a grant of 12 million for the period from 2013 to 2017 for National Resource Center on Family caregiving (NAC, 2012). -
58.8% of AAAs serving all caregivers remained unchanged
The number of AAAs serving caregivers of all ages remained at 58.8% (N4A). Recipients received: 58% Respite care, 47% Assessment for care planning, 41% case management, 28% Assessment for long-term care eligibility, 12% transportation medical, 15% transportation non-medical, 12% personal assessment / personal care, 14% homemaker, 13% adult day service, 10% assistive technologies, and 5% home health (N4A). -
Aging & Disability Resource Centers
72.4% of Area Agencies on Aging also function as Aging & Disability Resource Center (N4A). -
Strategies
Strategies to divert individual from institutional placement are implemented with 54% of AAAS providing caregiver education and training. Of the AAAs providing caregiver education, 52.1% are under the 3026 Award and 22% of those are fully reimbursed. (N4A). -
Veteran Directed Home and Community-Based Services (VD-HCBS)
31.9% of AAAs use Veteran Directed Home and Community-Based Services (VD-HCBS) and family caregiver community-based services to avoid nursing homes. (N4A). -
145.6 million funded
145.6 million was funded to NFCSP as reported by the National Council on Aging (NCOA, 2015). -
25% caregiver support service match
Federal funding of 1.88 billion for OAA services that requires states to match 25% for caregiver support services (Fox-Grage & Uvari, 2014). -
146.6 million funded
145.6 million was funded to NFCSP as reported by the National Council on Aging (NCOA, 2015). -
OAA Reauthorization 2015 referred to HELP
S.192 - Older Americans Act Reauthorization Act of 2015 was referred to the Committee on Health, Education, Labor, and Pensions. It will reauthorize funding for family caregiver support for 2016-2018 (114th Congress, 2015-2016). -
150.6 million requested for 2016
Administration requested 150.6 million in funding for NFCSP as reported by the National Council on Aging (NCOA, 2015). -
State Long-Term Care Ombudsman Program final rule
State Long-Term Care Ombudsman Program final rule (Federal Register, 2015). -
OAA Reauthorization 2015 passed by Senate
S.192 - Older Americans Act Reauthorization Act of 2015 was passed by Senate without amendment by Voice Vote (114th Congress, 2015-2016). -
OAA Reauthorization 2015 rcvd in House
S.192 - Older Americans Act Reauthorization Act of 2015 was received in the House for Floor Consideration and referred to the House Committee on Education and the Workforce (114th Congress, 2015-2016). -
Only 145.6 million approved
House and Senate approved 145.6 million for funding to NFCSP as reported by the National Council on Aging (NCOA, 2015). -
Final
Since the enactment of the NFCSP in 2000, the number of programs focused on meeting the needs of caregivers grew due to an increased awareness of the issues. The definition of caregiver has been expanded to include parents caring for adult disabled children, but will likely expand more in the future to recognize other types of families. The programs are working well, but with funding remaining level rather than increasing, this will become more challenging as the number of caregivers grows. -
References
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References (continued)
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State Long-Term Care Ombudsman Programs Rule will begin
State Long-Term Care Ombudsman Programs Rule will begin (ACL, n.d.).
